AUTISM
by definition
Autism spectrum disorder (ASD) is a neurological and developmental disorder that affects how people interact with others, communicate, learn, and behave. Although autism can be diagnosed at any age, it is described as a “developmental disorder” because symptoms generally appear in the first two years of life.
According to the Diagnostic and Statistical Manual of Mental Disorders (DSM-5), a guide created by the American Psychiatric Association that health care providers use to diagnose mental disorders, people with ASD often have:
Difficulty with communication and interaction with other people
Restricted interests and repetitive behaviors
Symptoms that affect their ability to function in school, work, and other areas of life
Autism is known as a “spectrum” disorder because there is wide variation in the type and severity of symptoms people experience.
People of all genders, races, ethnicities, and economic backgrounds can be diagnosed with ASD. Although ASD can be a lifelong disorder, treatments and services can improve a person’s symptoms and daily functioning. The American Academy of Pediatrics recommends that all children receive screening for autism. Caregivers should talk to their child’s health care provider about ASD screening or evaluation.
Signs and Symptoms of ASD
People with ASD have difficulty with social communication and interaction, restricted interests, and repetitive behaviors. The list below gives some examples of common types of behaviors in people diagnosed with ASD. Not all people with ASD will have all behaviors, but most will have several of the behaviors listed below.
Social communication / interaction behaviors may include:
Making little or inconsistent eye contact
Appearing not to look at or listen to people who are talking
Infrequently sharing interest, emotion, or enjoyment of objects or activities (including by infrequently pointing at or showing things to others)
Not responding or being slow to respond to one’s name or to other verbal bids for attention
Having difficulties with the back and forth of conversation
Often talking at length about a favorite subject without noticing that others are not interested or without giving others a chance to respond
Displaying facial expressions, movements, and gestures that do not match what is being said
Having an unusual tone of voice that may sound sing-song or flat and robot-like
Having trouble understanding another person’s point of view or being unable to predict or understand other people’s actions
Difficulties adjusting behaviors to social situations
Difficulties sharing in imaginative play or in making friends
Restrictive / repetitive behaviors may include:
Repeating certain behaviors or having unusual behaviors, such as repeating words or phrases (a behavior called echolalia)
Having a lasting intense interest in specific topics, such as numbers, details, or facts
Showing overly focused interests, such as with moving objects or parts of objects
Becoming upset by slight changes in a routine and having difficulty with transitions
Being more sensitive or less sensitive than other people to sensory input, such as light, sound, clothing, or temperature
People with ASD may also experience sleep problems and irritability.
People on the autism spectrum also may have many strengths, including:
Being able to learn things in detail and remember information for long periods of time
Being strong visual and auditory learners
Excelling in math, science, music, or art
From https://www.nimh.nih.gov/health/topics/autism-spectrum-disorders-asd
Books
Armond Goes to a Party: A Book About Asperger’s and Friendship (2014) by Nancy Carlson and Armond Isaak
The Real Experts - Readings for Parents of Autistic Children http://www.amazon.com/Real-Experts-Readings-Autistic-Children/dp/0986183563/ref=sr_1_1?ie=UTF8&qid=1464128983&sr=8-1&keywords=The+real+experts
Been There. Done That. Try This! An Aspie’s Guide to Life on Earth https://www.amazon.com/BeenThereDoneThatThis/dp/1849059640
Neurotribes: The Legacy of Autism and the Future of Neurodiversity (2016) https://www.amazon.com/Neurotribes-Legacy-Autism-Future-Neurodiversity/dp/
The Complete Guide to Asperger’s Syndrome by Tony Attwood https://www.amazon.com/CompleteGuideAspergersSyndrome/dp/1843106698
The Asperkid's (Secret) Book of Social Rules: The Handbook of NotSoObvious Social Guidelines for Tweens and Teens with Asperger Syndrome by Jennifer Cook O’Tool https://www.amazon.com/Asperkids-Secret-Book-Social-Rules/dp/1849059152
Loud Hands: Autistic People, Speaking https://www.amazon.com/Loud-Hands-Autistic-People-Speaking/dp/1938800028/ref=sr_1_1?s=books&ie=UTF8&qid=1490595008&sr=1-1&keywords=loud+hands
I Think I Might Be Autistic by Cynthia Kim https://www.amazon.com/Think-Might-Autistic-Diagnosis-Self-Discovery/dp/0989597113/ref=sr_1_1?s=books&ie=UTF8&qid=1490594900&sr=1-1&keywords=i+think+i+might+be+autistic
A Field Guide to Earthlings: An Autistic/Asperger View of Neurotypical Behavior by Star Ford https://www.amazon.com/Field-Guide-Earthlings-autistic-neurotypical/dp/0615426190/ref=sr_1_1?s=books&ie=UTF8&qid=1490594850&sr=1-1&keywords=field+guide+to+earthlings
The ABCs of Autism Acceptance https://autonomous-press.myshopify.com/collections/newest-releases/products/the-abcs-of-autism-acceptance-by-sparrow-rose-jones
What Every Autistic Girl Wishes Her Parents Knew https://www.amazon.com/What-Every-Autistic-Wishes-Parents/dp/0997504528/ref=sr_1_1?ie=UTF8&qid=1489725112&sr=8-1&keywords=what+every+autistic+girl+wishes+her+parents+knew
Been There. Done That. Try This! - An Aspie’s Guide to Life on Earth https://www.amazon.com/Been-There-Done-That-This/dp/1849059640
The Asperkid's (Secret) Book of Social Rules: The Handbook of Not-So-Obvious Social Guidelines for Tweens and Teens with Asperger Syndrome by Jennifer Cook O’Tool https://www.amazon.com/dp/1849059152/ref=pd_lpo_sbs_dp_ss_2?pf_rd_p=1944687642&pf_rd_s=lpo-top-stripe-1&pf_rd_t=201&pf_rd_i=1843106698&pf_rd_m=ATVPDKIKX0DER&pf_rd_r=7VERN2AAN3WK1Q8QJKA2
Aspergirls by Rudy Simone https://www.amazon.com/Aspergirls-Empowering-Females-Asperger-Syndrome/dp/1849058261/ref=sr_1_1?s=books&ie=UTF8&qid=1489724270&sr=1-1&keywords=aspergirls
All the Weight of Our Dreams: On Living Racialized Autism https://www.amazon.com/dp/0997504501/ref=cm_sw_su_dp
Authoring Autism: On Rhetoric and Neurological Queerness - by Melanie Yergeau https://www.dukeupress.edu/authoring-autism
“Unapologetically Aspie”, works of Tarra Vance
Aspienwomen by Tania Marshall (book)
Blogs
The works of John Elder Robison http://www.johnrobison.com/
The works of Temple Grandin http://www.templegrandin.com/templegrandinbooks.html
Parenting Autistic Children with Love and Acceptance, official blog: http://autloveaccept.wordpress.com/
Autism is not the neurotypical stereotype: https://aeon.co/essays/the-autistic-view-of-the-world-is-not-the-neurotypical-cliche
Blog of Amy Sequenzia - Non Speaking Autistic Speaking: http://nonspeakingautisticspeaking.blogspot.com/
Blog of Elizabeth (Ibby) Grace: Grace Notes (Ask an Autistic) http://tinygracenotes.blogspot.com/
How “Autism Warrior Parents” Harm Autistic Kids - http://www.theestablishment.co/2016/09/22/how-autism-warrior-parents-harm-autistic-kids/
Respectfully Connected - another parent-oriented blog: http://respectfullyconnected.com/
We Are Like Your Child: http://wearelikeyourchild.blogspot.com/
Autistic people don’t support ABA: https://abacontroversyautism.wordpress.com/?fbclid=IwAR3WXr66HISHZhGeeI7k1FoafRJrj60YgyLLpGGkIIYSPbJjAYFcIm03H6A
Psych Central:
Experiences of Late Diagnosed Women (Journal Article): http://link.springer.com/article/10.1007/s10803-016-2872-8?wt_mc=Internal.Event.1.SEM.ArticleAuthorOnlineFirst
Autistic Females: Hidden Too Long by Joel Schwartz (blog): https://www.linkedin.com/pulse/autistic-females-hidden-too-long-joel-schwartz
Total Spectrum Counseling: https://totalspectrumcounseling.com/blog.html
Autism Discussion Page: https://www.facebook.com/autismdiscussionpage/?fref=ts&ref=br_tf
Autism Acceptance: https://www.facebook.com/PromoteAutismAcceptance/?fref=ts
Asperger’s Support Network: https://www.facebook.com/ASPERGERSSUPPORTNETWORK/
Parenting Autistic Children with Love and Acceptance (used as a place to ask questions and receive advice from fellow parents, Autistic people, and Autistic parents): https://www.facebook.com/ParentingAutisticChildrenWithLoveAcceptance
Websites
National Autism Society: https://nationalautismassociation.org/
NC Autism Society: https://www.autismsociety-nc.org
Autism Speaks: www.autismspeaks.org
https://www.understood.org/en/articles/is-autism-a-learning-disability
Wrong Planet (Autism web community): http://wrongplanet.net/
Videos
Autism Explained - Fast Facts: https://www.youtube.com/watch?v=CaRdPYvWt48&feature=youtu.be&fbclid=IwAR18Ev4kBEtIg_fHhgpJrWqtwWwlEU4V7X-qurCwGMrw7GcJV9rswePUTq0
Cartoon Character Arthur explains Aspergers: https://www.youtube.com/watch?v=s9eATBV-_lg
Anna Walker’s Advice for Parents: https://www.youtube.com/watch?v=N6GnPgro5BY
Nonverbal Autistic Woman, Carly Fleischman interviews Channing Tatum:https://www.youtube.com/channel/UCeKKQlMB1NeOLN31_CSJFRQ
Ask an Autistic: https://www.youtube.com/watch?v=Vju1EbVVgP8&list=PLK6dftcRS54VBMiDNAaPk_cvLqTa1OgVW
Spectrum the movie: https://vimeo.com/ondemand/spectrumthefilm
10 Inspirational Autistic people: https://www.youtube.com/watch?v=BoqnPZXLGVA
Autistic ways of being: https://www.youtube.com/watch?time_continue=494&v=JnylM1hI2jc
A validating an accepting message from Agony Autie: https://www.facebook.com/watch/?v=419856162201180
Nick Walker’s Advice for Parents ¬ https://www.youtube.com/watch?v=N6GnPgro5BY
Programs
TEACCH Autism Program: https://teacch.com/
Raleigh TEACCH Center: 4301 Lake Boone Trail, Suite 200, Raleigh, NC 27607 ; (919) 445 – 5800
Launching Program: www.launching.center (919) 548-4400 ; Bohdan Hrynewych, LCSW
Sensory Enrichment Therapy: An evidence-based treatment that involves sensory and motor exercises that stimulates two or more senses simultaneously.
Mendability is an online resource that assists with implementation of the treatment (www.mendability.com)
IGNITE Raleigh: IGNITE is a unique “peer-to-peer” community center for young adults with high-functioning autism or Asperger’s Syndrome transitioning into adulthood. IGNITE offers activities and educational groups that foster independence and social interaction. Members work toward financial, educational, and employment success IGNITE Raleigh offers two six-month sessions for young adults. Sessions include 25 hours per week of programming (M-F, either from 9:00 a.m. – 2:30 p.m., or 3:30-8:00 p.m.) as well as two community weekend activities each month. https://www.autismsociety-nc.org/ignite/
InterventionsFloortime method: https://www.stanleygreenspan.com/about-floortime
Relationship Development Intervention: www.RDIconnect.com
Rapid Prompting Method: http://www.halo-soma.org/main.php?sess_id=33023562b3af775b50e66fa6486623a9
SON-Rise - http://www.autismtreatmentcenter.org